I introduced this book a few months ago on this blog at
http://shakypawsgrampa.blogspot.com/2013/04/carina-and-her-care-partner-grammma.html. The book is now available on Amazon (http://www.amazon.com/s/ref=nb_sb_noss?url=node%3D4&field-keywords=carina+and+her+care+partner+gramma) and will be available soon at all online bookstores and on the Innovo Publishing website. I think the soft cover (paperback) version is the best value as it is identical to the hardback except for the cover, which is laminated and should hold up well.
About the Book: Carina and Her Care Partner Gramma, the second book in the Shaky Paws Grampa series, was written to address Parkinson's disease (PD) specifically and to provide a communication tool for people with Parkinson's to use with their children or grandchildren. This book provides details specific to PD symptoms and mentions important issues in the "PD world," including deep brain stimulation therapy, PD advocacy, the importance of exercise, the need for patient participation in clinical research studies, and the importance of care partners. Carina and Her Care Partner Gramma was conceived and written by Kirk Hall and illustrated by Alison Paolini, PD patients who also are parents and grandparents. A portion of the proceeds from the sale of this book will be donated to support Parkinson's research and awareness. **** About the Author: Kirk Hall is a husband, father, and grandfather of six living in the Denver area. He has been an author and patient perspective Parkinson's advocate since 2011. His personal experience as a person with Parkinson's includes participation in three area support groups, clinical research studies including two visits to the National Institutes of Health's (NIH) National Institute of Neurological Disorders and Stroke (NINDS), and joint presentations with movement disorder specialists to support groups sponsored by the Parkinson Association of the Rockies (PAR) and University of Colorado Hospital. Kirk has been a guest speaker at the Muhammad Ali Parkinson Center in Phoenix and has been the subject of television, radio, and newspaper interviews. He and his wife of 43 years, Linda, are Parkinson Disease Foundation (PDF) clinical research advocates. Kirk's Shaky Paws Grampa blog, which includes articles about his writing, advocacy activities, PD-related subjects, and personal journey can be found at http://shakypawsgrampa.blogspot.com/. **** About the Illustrator: Alison Paolini lives in Northern California where she enjoys a multitude of creative activities. She studied acting, set design, fine art, and commercial illustration at California State University at Northridge where she received her BA in Art. Alison is a published illustrator and poet. She is an active member of the Parkinson's Association of Northern California. She and her husband have two children and three grandchildren. They have enjoyed living in and visiting many parts of the world.
http://shakypawsgrampa.blogspot.com/2013/04/carina-and-her-care-partner-grammma.html. The book is now available on Amazon (http://www.amazon.com/s/ref=nb_sb_noss?url=node%3D4&field-keywords=carina+and+her+care+partner+gramma) and will be available soon at all online bookstores and on the Innovo Publishing website. I think the soft cover (paperback) version is the best value as it is identical to the hardback except for the cover, which is laminated and should hold up well.
About the Book: Carina and Her Care Partner Gramma, the second book in the Shaky Paws Grampa series, was written to address Parkinson's disease (PD) specifically and to provide a communication tool for people with Parkinson's to use with their children or grandchildren. This book provides details specific to PD symptoms and mentions important issues in the "PD world," including deep brain stimulation therapy, PD advocacy, the importance of exercise, the need for patient participation in clinical research studies, and the importance of care partners. Carina and Her Care Partner Gramma was conceived and written by Kirk Hall and illustrated by Alison Paolini, PD patients who also are parents and grandparents. A portion of the proceeds from the sale of this book will be donated to support Parkinson's research and awareness. **** About the Author: Kirk Hall is a husband, father, and grandfather of six living in the Denver area. He has been an author and patient perspective Parkinson's advocate since 2011. His personal experience as a person with Parkinson's includes participation in three area support groups, clinical research studies including two visits to the National Institutes of Health's (NIH) National Institute of Neurological Disorders and Stroke (NINDS), and joint presentations with movement disorder specialists to support groups sponsored by the Parkinson Association of the Rockies (PAR) and University of Colorado Hospital. Kirk has been a guest speaker at the Muhammad Ali Parkinson Center in Phoenix and has been the subject of television, radio, and newspaper interviews. He and his wife of 43 years, Linda, are Parkinson Disease Foundation (PDF) clinical research advocates. Kirk's Shaky Paws Grampa blog, which includes articles about his writing, advocacy activities, PD-related subjects, and personal journey can be found at http://shakypawsgrampa.blogspot.com/. **** About the Illustrator: Alison Paolini lives in Northern California where she enjoys a multitude of creative activities. She studied acting, set design, fine art, and commercial illustration at California State University at Northridge where she received her BA in Art. Alison is a published illustrator and poet. She is an active member of the Parkinson's Association of Northern California. She and her husband have two children and three grandchildren. They have enjoyed living in and visiting many parts of the world.
Endorsements
“Kirk’s heart-warming story reinforces the special relationship children
and grandparents have, whilst skillfully weaving in the importance of carers
and family. This lovely book subtly opens the door to exploring with young
children the impact of Parkinson’s on daily life as well as the importance of
participating in clinical trials. A super read for all ages.”
European Parkinson Disease Association
London, UK
“I absolutely love this kid’s book! It really brings home the wonderful
relationships of grandchildren to grandparents and how they, too, are affected
by PD. Definitely a wonderfully
positive and honest perspective.”
Cheryl A. Siefert, MNM
Executive Director, Parkinson Association of the Rockies
“I loved your book. It made me cry. I loved that the “voice” was that of your
grandchildren and the personal illustrations. I am glad that you included the
surgery as it gave my kids an opening to ask questions.”
Kate Strittmatter
Early Onset Support Group Leader & early onset PWP
mother of two young children
“This book may be written for children, but Kirk’s loving
style is incredibly appropriate for people of all ages. He sends a beautiful
and very powerful message---a must-read for everyone.”
Carol Walton
CEO, Parkinson Alliance
“A ‘child's-eye view’ of Parkinson's disease as it
intersects with daily life. Much like Kirk's earlier work, this book provides
an opportunity to talk with children and other members of the family about the
disease in a direct but non-threatening way. I highly recommend it.”
John Dean
International Parkinson’s Speaker & Parkinson's
Program Coordinator, Mountain States Division at Life Care Centers of America
"A profound, yet delightfully innocent exploration of
the complex facets of living
with the day to day challenges of caring for people with Parkinson's. A must read for young and old together who cherish a simple and gentle way to stimulate curiosity and dialogue about Parkinson's Disease."
Peter Davison
with the day to day challenges of caring for people with Parkinson's. A must read for young and old together who cherish a simple and gentle way to stimulate curiosity and dialogue about Parkinson's Disease."
Peter Davison
International Motivational Speaker & early onset
PWP father of two preschool children
Carina And Her Care Partner Gramma is available at www.InnovoPublishing.com
and at all online bookstores including Amazon (http://www.amazon.com/s/ref=nb_sb_noss?url=node%3D4&field-keywords=carina+and+her+care+partner+gramma)
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