Response to article in Dr, Michael Okun blog:
As my symptoms have evolved over the last five years or so
I have intentionally reduced my involvement in advocacy. I remain very much
committed to the PD "palliative care movement" and INPCS.
Interestingly, I have become increasingly involved in music
therapy since joining the Arizona Tremble Clefs (trembleclefsarizona.org).
As my PD has evolved, my appreciation for this group and its members has grown.
I have always enjoyed singing, but as my vocal ability has deteriorated, I find
that what I enjoy most is the sense of community and caring shared by people
who are "all in the same boat". Meanwhile, in the "real
world" I am feeling more like the folks in "Animal House" that
are led to a sofa reserved for social outcasts.
I now realize that music therapy is perfect fit in the
palliative care model as it clearly improves quality of life, One of the major
reasons is the acceptance and unconditional love we experience from the group
and dedicated leadership.
